Useful Links
National Hospice and Palliative Care Organization (www.nhpco.org) is
committed to improving end of life care and expanding access to hospice care. The organization advocates for
the terminally ill and their families, and develops public and professional educational programs
and materials.
National Family Caregivers Association (www.nfcacares.org) is a national,
charitable organization dedicated to making life better for all of America's family caregivers.
There are more than 25 million people who find themselves in a caregiving role. And the numbers
are growing daily. Family caregivers focus on their loved one's needs. NFCA focuses on family
caregivers.
The Carolinas Center for Hospice and End of Life Care (www.carolinasendoflifecare.org)
Web site provides a comprehensive resource to improve hospice, palliative, and end of life care.
The Center acts as an advocacy organization for hospices in North and South Carolina.
Epidemiology of Dying and End-of-Life Experience(EDELE) (www.edeledata.org)
Web site is an access point for healthcare providers, advocacy organizations, health services
researchers, and state policy makers to find data about the experience of end of life. This
project goal is to make data about decedents and the experience of end-of-life care readily
available via the internet.
Caring Connections (www.caringinfo.org) provides useful information for
consumers about hospice care. The site also provides downloadable states advance directives.
CancerNursing.org (www.cancernursing.org) is an online learning site dedicated
to the provision of high quality courses which aim to enhance the understanding and the skills of
health professionals and others concerned with the care of cancer patients.
American Academy of Hospice Palliative Medicine (www.aahpm.org) is the only organization
in the United States for physicians dedicated to the advancement of hospice/palliative medicine, its practice,
research and education.
Children's Hospice International (www.chionline.org) was founded as a non-profit organization to provide a
network of support and care for children with life-threatening conditions
and their families.
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